Official websites use. Share sensitive information only on official, secure websites. Correspondence Ajay K. Currently, there is little understanding of how different program measures are prioritized by patients in selecting a program for transplantation. Survey participants identified how many different programs would be reasonable to consider and viewed four measures that have recently been displayed on SRTR public search result websites and six measures not recently displayed and indicated importance on a 5-point scale.
Seventy-eight percent indicated that considering more than one program would be reasonable. Linear mixed models adjusted for organization, education, and gender. Posttransplant survival after transplant was rated as 0. Results indicate that many patient advocacy group members find a choice between two or more programs reasonable and value multiple measures when assessing programs where they may want to undergo transplantation.
The Scientific Registry of Transplant Recipients SRTR provides federally mandated program-specific transplant data to the public, including data about program characteristics and outcomes. Kidney-specific surveys have identified the importance of broad categories of metrics, but do not identify individual metrics to inform public reports. Understanding priorities of a broader patient population can guide the development of patient-friendly information about transplant programs and improve informed decision making for transplant candidates.
Three national patient advisory groups were engaged to reach transplant patients and support group members for multiple organ types. Transplant families TF provides support to the transplant community, often parents of pediatric heart transplant patients.
An online survey for members of these organizations was used to collect data on participant characteristics and priorities for information important to choosing a transplant program.
